Devin Shuman (she/her)
Current Employment:
Genetic Support Foundation - Genetic Counselor
Provides telehealth genetic counseling to pediatric, adult, prenatal, preconecption, metabolic, cardiogenetic, and direct-to-consumer patients.
Co-Host of Disability Community Connection, a monthly video meeting for Disabled genetic counselors to bond, vent, and mentor.
Licensed in AL, CA, FL, GA, IL, MA, MT, NJ, OR, PA, and WA.
U.S. Food and Drug Administration - Alternate Consumer Representative
Represents the consumer perspective on issues and actions before the advisory committee; facilitates dialogue with the advisory committees on scientific issues that affect consumers.
Current Volunteer Positions:
United Mitochondrial Disease Foundation
Host of Teen and Young Adult Support Call, a weekly Zoom support call for young adults with mitochondrial diseases since March 2020.
Host of Wondering Wednesday, Ask a GC, a monthly webinar for individuals and families affected by mitochondrial disease to ask genetics questions.
Co-Host of a monthly Zoom meeting for healthcare providers who themselves have mitochondrial disease.
American Council for Genetic Counseling - Member of their first DEIJ Committee
Creator of ACGC’s DEIJ Language Guide
GRIN2B Foundation - Medical Advisory Board Member
As a Disabled, LGBT, genetic counselor I am passionate about using my patient, family member, and healthcare provider hats to advocate for my communities. I do not believe in separating my various identities out - they all come together to make me who I am today.
Education
University of CA Irvine - M.S. Genetic Counseling
Thesis: An Assessment of the Cystic Fibrosis Community’s Use of Social Media as a Community and Medical Resource.
Smith College - B.A. Psychology, 2014
Minors: Chemistry, Biology, Neuroscience
